Jon Huml joined the Alliance of Disability Advocates in the summer of 2016 as a Youth Independent Living Intern, and will be attending the University of North Carolina-Chapel Hill in the fall as a freshman. Jon enjoys most sports, especially baseball and football, as well as the outdoors. He was a Boy Scout until early high school, and earned his Eagle Scout rank at 13 years old. After noticing a decline in his physical abilities, Jon was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in 2013. While playing baseball, hiking, or whitewater rafting were no longer viable pastimes, the diagnosis afforded him an opportunity to expand his interests and meet new people. Through the suggestion of his grandpa, a former pilot, Jon began flying lessons at Raleigh-Durham International Airport and has logged roughly 70 hours in the air as well as many more learning about aviation on the ground. He maintains a strong interest in academics and recently graduated from Cardinal Gibbons High School. As he begins his time at Chapel Hill, Jon has a biomedical engineering major intent in coordination with his desire to develop medical technology for people with disabilities.
If you would like more information or to contact Jon, you can email him at firstname.lastname@example.org